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Hemophilia Federation of America in Washington, DC
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Date Posted 01/31/2020
Philanthropy-Senior/Executive Management
Employment Type Fulltime
Application Deadline Open until filled



Location – Remote

The Aspen Leadership Group is proud to partner with Hemophilia Federation of America in the search for a President and Chief Executive Officer.

Reporting to the Board of Director, the President and Chief Executive Officer will work in collaboration with the Board of Directors on strategy development and provide overall strategic leadership and managerial responsibility for Hemophilia Federation of America (HFA) as it executes on programs and services that advance the organization’s mission.  The President and Chief Executive Officer will direct the senior leadership team across the organization to ensure that advocacy, programs and services, research, as well as development, finance, volunteerism, marketing, communications, information technology, human resources, and administration activities are organized for optimal success. The President and Chief Executive Officer will maintain a persistent laser eye toward results that support HFA’s vision, mission, and key objectives.

The President and Chief Executive Officer will act as a key advocate and spokesperson for HFA, advancing public dialogue on key issues to the bleeding disorders community with key senior stakeholders in similar agencies and regulatory, government, and industry leadership. The successful candidate will be a leader with a solid work ethic, commitment to lead via servant leadership, and willingness to learn and grow with a changing organization.

Hemophilia Federation of America is a nonprofit 501(c)(3) patient education, services, and advocacy organization serving the rare bleeding disorders community. It is exclusively focused on the bleeding disorders patient and caregiver community. Incorporated in 1994, HFA serves as a community-based organization, committed to championing the needs of families living with chronic, often painful, and debilitating bleeding disorders. It advocates for safe, affordable, and obtainable therapies and health coverage. HFA seeks a better quality of life for all persons with bleeding disorders.

HFA works in conjunction with other national and state organizations on behalf of families living with bleeding disorders. Its officers and staff maintain a highly visible presence, representing the bleeding disorders community on Capitol Hill, and speaking regularly before the Food and Drug Administration, Centers for Disease Control and Prevention, and other key agencies. HFA is committed to community education and provides tools and resources to give the community a voice at state and federal legislatures.

HFA consists of a national organization office and 50 state and local community-based member organizations serving men, women, children, moms, dads, siblings, grandparents, and friends impacted by a bleeding disorder. Additionally, HFA works with many non-affected individuals and organizations, such as healthcare providers, therapy providers, specialty pharmacies, donors, and insurers that play a significant role in the community. HFA programs include a wide range of adult outreach initiatives, as well as broad-based support for families living with hemophilia, von Willebrand disease, and other bleeding disorders.

A bachelor's degree is required for this position. An advanced degree is preferred. At least ten years of successful leadership, management, and fundraising experience is preferred as is prior experience successfully managing a nonprofit. An ability to communicate in Spanish is a plus (but not required). All applications must be accompanied by a résumé and a cover letter. Cover letters should be responsive to the mission of Hemophilia Federation of America.

This is a remote position, and the successful candidate may have the option to work remotely from anywhere in the United States. There is a preference for the Washington, D.C. Metropolitan area. The successful candidate will be expected to be onsite in Washington D.C. two to three days per month and travel nationally 40% to 50% of the time.

To apply for this position, visit:

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