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Chief Executive Officer
Myasthenia Gravis Foundation of America in New York City, New York
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Date Posted 01/28/2020
Philanthropy-Senior/Executive Management
Employment Type Fulltime
Application Deadline Open until filled

The Batten Group, a national executive search and consulting firm specializing in nonprofit, health and mission-based philanthropy, has partnered with the Myasthenia Gravis Foundation of America to identify candidates to lead the organization as Chief Executive Officer. The incumbent will work from a home-based office anywhere in the 48 contiguous states. 

Position Summary

The Myasthenia Gravis Foundation of America (MGFA) is seeking a dynamic leader to fill the position of Chief Executive Officer. Established in 1952, MGFA is the only nationwide organization solely dedicated to serving people affected by myasthenia gravis and related disorders. Stakeholders include MG patients and family members, scientists and clinicians, national and community volunteers, donors, sponsors and fundraisers, and the pharmaceutical industry.    Qualified candidates for this important position will have 10+ years in an organizational leadership and staff management position, with experience in strategic and operational planning and budgeting and financial management of an organization or department. They should also have experience working with non-profit organizations (either as staff or as an active volunteer) as well as strong communications skills including writing and editing, and public speaking.   Top candidates will demonstrate the ability to ensure exceptional customer service, lead and inspire volunteers and staff, and engage donors and the MG community to support and work with the organization.   Position Duties and Responsibilities Board and Organization Development

  • Provides timely updates to the Board on matters of importance and ensures the Board is kept up-to-date on the work and achievements of MGFA

  • Works with the Board to determine MGFA values, mission and vision and keep them informed on the condition of MGFA and all important factor influencing it

  • Assist with the conduct of activities in support of the Board, including meetings, committees, communications and identification and recruitment of Board members

  • Maintain a working knowledge of significant developments and trends in the nonprofit health sector, including governance, philanthropy and fund development

Fiscal Development

  • Ensures the organization successfully meets its financial commitments, including the development of long and short-term financial plans

  • In conjunction with the Board, develops the organization’s strategic plan, goals and objectives

  • Approves yearly organizational budget and submits to the Board for approval

  • Establish the annual development plan, which represents opportunities for event fundraising, donor prospecting, cultivation, retention, upgrading, acknowledgement and recognition

  • Evaluates resources within the organization’s targeted markets to develop plans that maximize market penetration

  • Manage financial reserves to provide necessary funds to operate MGFA

Leadership and Management

  • Understanding of MGFA’s mission, goals, and objectives and ability to lead, motivate, inspire, and communicate a shared vision to all volunteers and staff

  • Consistently demonstrates, both internally and externally, integrity, credibility, and a commitment to and passion for MGFA’s mission

  • Recruits, manages and evaluates staff

  • Ensures processes for selecting, developing, motivating and evaluating volunteers


  • Reviews and approve all new operational policies and procedures

  • Reviews and approve technology and operations plan and assess value of external contractors

  • Ensures the filing of all legal and regulatory documents and monitors compliance with relevant laws and regulations

Program Development

  • Reviews proposed program activities and approves programs that meet the organization’s strategic and financial goals

  • Serves as lead staff contact with support groups, community groups and other constituents

  • Reviews and approves all research projects and management policies

  • Supports the program staff, support groups and Board of Directors by giving programs as requested by the Board Chair

Communications and Public Relations

  • Creates, reviews and approves annual marketing and communications strategy across all mediums, including social and digital media, print and in relationships with vendor and consultants, to ensure alignment with the organization’s short and long-term goals and financial commitments

  • Serves or selects a designee as faculty/speaker at national/international conferences

  • Meets regularly and as needed with congressional staff and federal agencies

  • Serve as principal staff spokesperson in representing MGFA to the public, media, policy community and other audiences

Candidate Qualifications

  • Demonstrated success in executing short and long-term strategic plans and initiatives

  • Successful experience managing teams remotely

  • Working knowledge of the concepts, practices and delivery of health advocacy, health education, and public health policy initiatives

  • Demonstrated ability to work with diverse communities, including healthcare professionals, individuals with a complex disease and minority populations

  • Strong knowledge of and proven ability to develop and implement multi-faceted development, fundraising and communication strategies and plans

  • Strong communication skills, serving as a powerful voice for MGFA

  • Proven success is building corporate, foundation and major gift supporters

  • Public policy experience with Capitol Hill, Federal Agencies, Administrative officials and other key stakeholders

  • Ability to provide effective fiscal stewardship and financial oversight for a $2M+ non-profit agency operating budget

  • Experience and ability to effectively work with a Board of Directors

  • Possesses strong interpersonal skills as demonstrated by professional interaction with diverse groups of co-workers, external business partners, members, government officials, funders, and the community

  • Demonstrated non-profit leadership experience, preference for experience leading a health advocacy organization

  • BA/BS degree from an accredited college or university, preferably in Health Education, Public Health, or a related field

  • Able to travel 10-20% of the time as needed

To apply, please send a cover letter and resume to Jim Batten, President at or call at (704) 651-7858. 


*Please mention to employers when applying for this job*
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